Epilepsy Resources:
Benefits
Benefits.gov
Benefits.gov (www.Benefits.gov) offers information on more than 1,000 Federal and state benefit programs. Simply complete the free and confidential questionnaire and our prescreening tool will generate a tailored list of programs just for you.
Connecticut JOBS FIRST-Temporary Assistance for Needy Families
Temporary Family Assistance is the name for the cash assistance program for basic and special needs which are paid to recipients of Jobs First.
Disability.gov
Disability.gov provides a number of ways to find information about Social Security disability benefits and other benefit programs for people with disabilities.
Social Security and Disability Resource Center (SSDRC)
Provides information on the federal government's two disability benefit programs - Title II SS disability benefits and Title 16 SSI disability benefits.
Social Security Disability Benefits
Supplemental Nutrition Assistance Program (Food Stamps)
SNAP provides low-income households with electronic benefits they can use like cash at most grocery stores. SNAP is the cornerstone of the Federal food assistance programs, and provides crucial support to needy households and to those making the transition from welfare to work.
Veterans-National Resource Directory
The National Resource Directory (NRD) provides access to services and resources at the national, state and local levels that support recovery, rehabilitation and community reintegration to wounded warriors, service members, veterans, and their families.
Education and Advocacy
Connecticut Parent Advocacy Center
The CT Parent Advocacy Center, Inc. (CPAC) is a statewide nonprofit organization that offers information and support to families of children with any disability or chronic illness, age birth through 26. The Center is committed to the idea that parents can be the most effective advocates for their children, given the confidence that knowledge and understanding of special education law and its procedures can bring.
Connecticut Special Education PTA (SEPTA) Council
Statewide organization whose primary mission is to facilitate the sharing of information among groups that support families of children with special needs, including both PTA and non-PTA organizations, and to communicate such information to families and teachers who would benefit from these services.
Epilepsy Classroom
We're Here to Help: Created for parents & teachers. Epilepsy Classroom is here to provide advice, insight, and tools that can help make handling epilepsy just another part of the school day.
Epilepsy Explained Just for Kids
Trusted answers from the Hospital for Sick Children.
Smart Kids with Learning Disabilities
A resource for parents of children with learning disabilites and ADHD.
Wrights Law
Wrights law is a website which provides case studies, information, and advocacy for special education.
Employment
Ability Beyond Disability
Since 1953, Ability Beyond Disability has been helping hundreds of individuals each year to find meaningful employment at major corporations, local businesses, retail stores, restaurants, child and health care programs and a number of rewarding opportunities in the community.
CT Bureau of Rehabilitation Services
The Bureau gives individuals with significant physcial and/or mental disabilities the tools, information and support they need to find a job.
Disability.gov
Think Beyond the Label
An online jobs portal that connects job seekers with disabilities to employers, including those that are actively seeking to hire them.
En Espanol (Spanish)
Benefits.gov
Su acceso a los beneficios del Gobierno
Conozca las Preguntos "Know the Questions"
Health Talk for Spanish-Speakers from the Agency for Healthcare Research & Quality (AHRQ)
Healthfinder.gov
Vive Bien. Aprende Como.
La Epilepsia
En Espanol-Epilepsy Foundation of America
NeedyMeds
Encuentre ayuda con el costo de los medicamentos.
Epilepsy Treatment & Research
Connecticut Study of Epilepsy
Our study is devoted to the understanding of seizure outcomes as well as the social, educational, employment, and behavioral impact of childhood and adolescent-onset epilepsy on the individual as well as on the family.
faces - Finding A Cure For Epilepsy & Seizures
Website for Finding A Cure for Epilepsy and Seizures (faces). Faces supports epilepsy research, education and awareness, and community building events for all people with epilepsy.
National Institute of Neurological Disorders & Stroke
Healthcare & Medical
Connecticut Medical Home Initiative for Children & Youth with Special Health Care Needs (CYSHCN)
In a medical home, a pediatric health care provider works in partnership with children and youth and their families to assure that all the medical and non-medical needs of the children and youth are met.
Healthcare Liaison (HCL)
Healthcare Liaison offers assistance with healthcare:
•Emergencies: Guiding you and your family through a crisis.
•Planning: Arranging for care during and after a hospital stay.
•Advocacy: Helping you understand and receive the care you need.
•Resources: Locating community resources for your healthcare needs.
•Long-term Planning: Addressing plans for care in the future for you and your family.
HealthCare.gov
You can learn more about the Affordable Health Care Act here.
Healthfinder.gov
Live Well. Learn How.
National Pre-Existing Condition Insurance Plan (PCIP)
Patient Advocate
Provides effective medication and arbitration services to patients to remove obstacles to healthcare.
Helmets/Headgear
Danmar Products
Custom head protection includes hard and foam shell helmets
Kid Safety Hats, LLC
Protective safety hats for children from 7 months until just over 2 years.
Plum Enterprises
Higher Education Scholarships and Aid
Benefits.gov Grants/Scholarships/Fellowships
College Scholarships.org
College Scholarships, Grants, Student Loans, & Financial Aid Blog
Epilepsy Foundation National Site
Help for College Students with Disabilites
Patient Advocate Foundation-Scholarships
Pfizer Epilepsy Scholarship Award
UCB Family Epilepsy Scholarship Program
Other Assistance
A. J. Pappanikou Center for Developmental Disabilities
The A. J. Pappanikou Center for Developmental Disabilities (center) is a disability research and training program located on the campus of the University of CT Health Center in Farmington, CT.
Citizens Energy/Home
Citizen's Energy Corporation exists to help make life's basic needs more accessible and affordable.
Housing-Disability.gov
J. Kiffin Penry Patient Travel Assistance Fund
The J. Kiffin Penry Patient Travel Assistance Fund is a reimbursement fund that is available to individuals who must travel more than 50 miles from their home for treatment for their epilepsy/seizure disorder.
The Kennedy Center
A not-for-profit rehabilitation agency supporting children and adults with disabilities.
Parents
Connecticut Family Support Network
A resource for Families Raising Children with Disabilities
CPAC-Disabaility Resource Directory for CT
Epilepsy & my Child
An informative website provided by the Epilepsy Foundation. Whether your child was just diagnosed, or you have specific concerns about medication, getting support at school, or another issue, the goal is to provide the information you need.
Exceptional Parent
The trusted resource for the Special Needs Community...Across the Lifespan
Hopeful Parents Network
A Grassroots Support for Parents of kids with special needs
Joey's Song CD-Songs for Kids
The Joseph Gomoll Foundation was setup to raise money in support of the Epilepsy Foundation. Our goal is to raise money that can be used for research, treatment and support of those affected by this terrible disease.
Because music was the centerpiece of Joey’s world, there is no better way for us to raise money in his name than through music. The Foundation is releasing a series of CDs called “Joey’s Song”. The CDs feature rare and unreleased songs by major recording acts from around the world. In addition, Joey’s Song for Kids features children’s music, most recorded specifically for Joey’s Song.
National Information Center for Children and Youth with Disabilities (NICHCY)
NICHCY provides information on disabilities and disability-related issues for families, educators and other professionals; focuses specifically on children and youth up to age 22.
Pacer Center
PACER Center was created by parents of children and youth with disabilities to help other parents and families facing similar challenges. The Center provides assistance to individual families, workshops, and materials for parents and professionals.
PATH-Parents Available to Help, Inc.
Parent Support for children with special needs in Connecticut-A family support & resource network
Sibling Support
The Sibling Support Project is a national effort dedicated to the life-long concerns of brothers and sisters of people who have special health, developmental, or mental health concerns.
Prescription Assistance Programs
Access2Wellness
Access2wellness is designed to help people to have better access to the prescription medication(s) they need.
Connecticut Partnership for Prescription Assistance
Need help with your medication supply? Visit this website or call 1-888-4PPA-NOW (1-888-477-2669) to find out what prescription assistance programs you qualify for.
GSKforYou.com
GlaxoSmithKline (GSK) believes people who don't have prescription drug coverage should be able to get the medication they need. If you don't have prescription drug coverage, there are ways to save on your prescription medicines.
Needy Meds
Needymeds is a 501(c)(3) non-profit information resource devoted to helping people in need find assistance programs to help them afford their medications and cost related to health care.
Patient Assistance Programs
Together Rx Access Card Allows Uninsured Americans to Afford Medications
At least 50 third-party organizations, including the Epilepsy Foundation, have voiced their support of the recently implemented Together Rx Access™ Card program, which promises to provide approximately 36 million uninsured Americans under age 65 with significant discounts on a wide array of brand-name and generic prescription products.
Professionals
Connecticut Children's Medical Center
Website for the neurology department at CCMC, including EEG testing and the Ketogenic Diet.
Northeast Regional Epilepsy Group
This group offers a broad range of clinical and diagnostic services necessary to provide comprehensive care for each and every patient with epilepsy.
NYU Comprehensive Epilepsy Center
Includes information about the NYU Comprehensive Epilepsy Center, the largest epilepsy center in the United States.
Yale New Haven Hospital - Pediatrics
Includes information about the Yale New Haven Pediatric Neurology Department
Yale New Haven Hospital - Adult
Includes information about the Yale New Haven Neurology Department
Seizure Response Dogs
Canine Assistants
Canine Partners for Life
Delta Society-National Service Dog Center
Little Angels Service Dog Training
Paws with a Cause
*The Epilepsy Foundation does not recommend or endorse any of these providers and urges consumers to perform their own research on this topic.
Services & Equipment
Epilepsy Foundation of America Store
MedicAlert Bracelets
Med alert bracelets and necklaces. 24 hour response center which can provide information to emergency personnel and family
Medication Reminder
Reminders and alerts to notify an individual of when to take their medication.
Safety Place Mat
Place mat specifically designed to protect individuals from head, face and upper body injuries while sitting at tables and desks.
SeizureTracker
The sole purpose of SeizureTracker.com is to help people living with epilepsy. This site allows a user to log seizures and medications and create reports with graphical representations that can be emailed directly to doctors.
Support & Information
Emergency Preparedness Information
Information from READY.gov (Prepare. Plan. Stay Informed.)All individuals should take steps to prepare for all kinds of emergencies from fire and floods to potential terrorist attacks.
Epilepsy & the African American Community
About the Campaign: This site was created to respond to the growing number of African Americans living with epilepsy. Know the difference is an outreach and education campaign to create dialogue in the African American community about the stigma and misconception surround epilepsy.
Epilepsy Life Links
Epilepsy Life Links website.
Epilepsy.com Web site
A wealth of epilepsy information from a variety of sources available in different formats.
EpilepsyAdvocate.com
Epilepsy Advocates are a community of people and their families living with all types of epilepsy. Get to know the inspirational stories of Epilepsy Advocates, people like you who are finding ways to take control of their epilepsy and their potential. Come back often for more information, insight, and support. And be inspired today - hear the stories our Advocates are sharing.
No More Seizures
This site also provides basic information but also ties into our website to try to encourage viewers to seek information in greater depth.
For more information about Epilepsy please visit the Epilepsy Foundation at www.epilepsyfoundation.org.
