Halyn's Law Signed By Governor Lamont

This legislation will be instrumental in combating the leading cause of death amongst the epilepsy population, Sudden Unexpected Death in Epilepsy (SUDEP). This legislation requires that continuing medical education of the Office of the Chief Medical Examiner must include specific training on SUDEP.

The bill also allows for more information to be collected by the North American SUDEP Registry in New York. As a result of this collection of data, we are hopeful that risk factors associated with SUDEP will be identified to help lower the instances of SUDEP amongst the epilepsy community.

Equally as important as the bill passing, is the date in which we were able to get this bill passed. With strategic outreach, we were able to get Halyn’s Law passed on the exact day of the two year anniversary of young Halyn’s tragic and unexpected death. Halyn’s name will now forever live on because of the passing of this bill.