About Us

Helping People and Families with Epilepsy

The Epilepsy Foundation of Connecticut is dedicated to improving the lives of people with epilepsy and their families. We are Connecticut's only affiliate of the national Epilepsy Foundation.

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Halyn's Law Signed By Governor Lamont

This legislation will be instrumental in combating the leading cause of death amongst the epilepsy population, Sudden Unexpected Death in Epilepsy (SUDEP). This legislation requires that continuing medical education of the Office of the Chief Medical Examiner must include specific training on SUDEP.

The bill also allows for more information to be collected by the North American SUDEP Registry in New York. As a result of this collection of data, we are hopeful that risk factors associated with SUDEP will be identified to help lower the instances of SUDEP amongst the epilepsy community.

Equally as important as the bill passing, is the date in which we were able to get this bill passed. With strategic outreach, we were able to get Halyn’s Law passed on the exact day of the two year anniversary of young Halyn’s tragic and unexpected death. Halyn’s name will now forever live on because of the passing of this bill.

Connecticut State Capitol Building

We Can Help

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Number of people in Connecticut that have epilepsy

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1 in 26 people in USA will develop epilepsy at some point in their lifetime

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People in the USA with epilepsy that live with uncontrolled seizures

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People in the USA with epilepsy that have seizures without a known cause

Seizure First Aid Steps

Know What To Do

Here is the general seizure first aid protocol to help someone that is having a seizure:

Stay with the person and start timing the seizure. Remain calm and check for medical ID.

Keep the person safe. Move or guide them away from harmful objects.

Turn the person onto their side if they are not awake and aware. Don't block airway. Put something small and soft under the head. Losewn tight clothes around the neck.

Do NOT put anything in their mouth. Don't give water, pills, or food until the person is awake.

Do NOT restrain.

Stay with the them until they are awake and alert after the seizure. Most seizures end in a few minutes.

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Upcoming Seizure First Aid Certification Training

The Seizure Recognition and First Aid certification training provides information to increase the knowledge, skills and confidence in recognizing seizures and safely administering seizure first aid.


All trainings are conducted virtually from 7-8:15PM using Zoom. Please register by clicking on the links. You will then receive a confirmation email with further instructions.

September 2nd, 2021
Click Here to Register

October 4th, 2021
Click Here to Register

Seizure First Aid Training

Upcoming Events

Living Well With Epilepsy Young Adult Support

 VIRTUAL MEETING

Share experiences, gain peer support and learn together about Epilepsy and overcoming challenges to live well with Epilepsy. Open to young adults ages 18-30.

Join support group leader Paige for a special virtual support group meeting.  All you need is a computer or smart phone to participate.

Email monica@epilepsyct.com to register.

  • 7:00pm - 8:00pm
  • December 1, 2021

Pre & Post Operative Epilepsy Support

A virtual meet-up for adults who have epilepsy and have undergone or are considering surgical intervention. This is an opportunity to learn from others' experiences in a mutually supportive setting.

Please email monica@epilepsyct.com for an invitation to join!

  • 6:00pm - 7:00pm
  • December 2, 2021

Pre/Teen Support Group

 Pre-Teen & Teen Social Support Group

Ages 12-17 are welcome to attend.

Please email monica@epilepsyct.com for more information and an invitation to join!

  • 7:00pm - 8:00pm
  • December 7, 2021

Parent Support Group

For parents who have children with Epilepsy to connect and support each other in a relaxed and informal group setting. 

All meetings with be virtual until further notice.

Please email monica@epilepsyct.com if interested in joining.

  • 7:00pm - 8:00pm
  • December 15, 2021

Open Adult Group

Adult Virtual Group

For adults, parents of children, and loved ones.

To register email monica@epilepsyct.com

  • 7:00pm - 8:00pm
  • December 21, 2021
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