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Helping People and Families with Epilepsy

The Epilepsy Foundation of Connecticut is dedicated to improving the lives of people with epilepsy and their families. We are Connecticut's only affiliate of the national Epilepsy Foundation.

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Halyn's Law Signed By Governor Lamont

This legislation will be instrumental in combating the leading cause of death amongst the epilepsy population, Sudden Unexpected Death in Epilepsy (SUDEP). This legislation requires that continuing medical education of the Office of the Chief Medical Examiner must include specific training on SUDEP.

The bill also allows for more information to be collected by the North American SUDEP Registry in New York. As a result of this collection of data, we are hopeful that risk factors associated with SUDEP will be identified to help lower the instances of SUDEP amongst the epilepsy community.

Equally as important as the bill passing, is the date in which we were able to get this bill passed. With strategic outreach, we were able to get Halyn’s Law passed on the exact day of the two year anniversary of young Halyn’s tragic and unexpected death. Halyn’s name will now forever live on because of the passing of this bill.

Connecticut State Capitol Building

We Can Help

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Number of people in Connecticut that have epilepsy

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1 in 26 people in USA will develop epilepsy at some point in their lifetime

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People in the USA with epilepsy that live with uncontrolled seizures

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People in the USA with epilepsy that have seizures without a known cause

Seizure First Aid Steps

Know What To Do

Here is the general seizure first aid protocol to help someone that is having a seizure:

Stay with the person and start timing the seizure. Remain calm and check for medical ID.

Keep the person safe. Move or guide them away from harmful objects.

Turn the person onto their side if they are not awake and aware. Don't block airway. Put something small and soft under the head. Losewn tight clothes around the neck.

Do NOT put anything in their mouth. Don't give water, pills, or food until the person is awake.

Do NOT restrain.

Stay with the them until they are awake and alert after the seizure. Most seizures end in a few minutes.

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