Epilepsy Advocacy at The Epilepsy Foundation of Connecticut

Supporting Epilepsy At the Capital Building in Connecticut

What it Means to be an Advocate

Epilepsy Advocacy in Connecticut

Individuals with Epilepsy face unique obstacles to care including difficulty accessing proper medications, inflated cost of treatment, and limited state and federal resources.

Through the Epilepsy Foundation of Connecticut's dedicated network of Advocates and events such as our annual Advocacy Day, we’re determined to fight for key policy issues in both the State and Federal capacities.

Epilepsy Legislative History

2011 Passed landmark legislation switching bill. Connecticut became the 1st state in the country to require the pharmacist to receive consent of a physician before substituting epilepsy medication.

2015 Passed legislation that allowed for critical access to the emergency seizure medication, Diastat, in a school setting.

2018 Hired full time government relations advocate .

2019 Successfully advocated for adding additional state funding for the Katie Beckett Waiver Program.

2019 Helped pass a bill to establish a task force to increase employment opportunities for persons with disabilities, including those living with epilepsy.

2021 Passed Halyn’s Law, requiring the continuing medical education of the Office of the Chief Medical Examiner to include in-depth training on SUDEP.

We Need Your Help!

The Epilepsy Foundation of Connecticut leads the fight to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures and save lives.

We need your help! Join our growing force of Advocates and help us in our mission to create positive change in Connecticut and on Capitol Hill. Contact us to see how you can become an Advocate today.

Become an Advocate for Epilepsy - Contact Us Today »

Advocacy

Epilepsy Advocacy in Connecticut

Epilepsy Legislative History

2011 Passed landmark legislation switching bill. Connecticut became the 1st state in the country to require the pharmacist to receive consent of a physician before substituting epilepsy medication.

2015 Passed legislation that allowed for critical access to the emergency seizure medication, Diastat, in a school setting.

2018 Hired full time government relations advocate .

2019 Successfully advocated for adding additional state funding for the Katie Beckett Waiver Program.

2019 Helped pass a bill to establish a task force to increase employment opportunities for persons with disabilities, including those living with epilepsy.

2021 Passed Halyn’s Law, requiring the continuing medical education of the Office of the Chief Medical Examiner to include in-depth training on SUDEP.

We Need Your Help!

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