What causes sudden unexplained death in epilepsy (SUDEP)? Doctors have some ideas, but they don’t really know yet. There are several research studies trying to answer this question. Some studies are looking at the many possible causes of SUDEP by following people living with epilepsy as well as reviewing the records of those who have died. Others are measuring what happens to your heart and lungs during a seizure. The MORTEMUS study is examining cases of SUDEP that have occurred in people with uncontrolled epilepsy being evaluated in epilepsy monitoring units. The North American SUDEP Registry is gathering case information and tissue samples from individuals who have died of SUDEP. In addition, researchers are looking at the role autopsies can and should play in SUDEP research. Plenty of time will be left at the end of the webinar to answer your questions.
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