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Dear Allison, Mary and the team that made Camp Courage possible; Thank you from the bottom of our hearts! It was an extraordinary experience for our daughter.... Camp Parent
Upcoming Webinar - What's Causes Sudden Unexplained Death in Epilepsy (SUDEP)?08/08/2013
What Causes Sudden Unexplained Death in Epilepsy (SUDEP)?
Thursday, September 12, 2013
Eastern: 3:00 PM
Elizabeth Donner, MD, FRCPC,
Faculty of Medicine, University of Toronto
Pediatric Neurologist, The Hospital for Sick Children
Co-Founder, SUDEP Aware
Lisa M. Bateman, MD, FRCPC
Associate Professor of Clinical Neurology,
What causes sudden unexplained death in epilepsy (SUDEP)? Doctors have some ideas, but they don’t really know yet. There are several research studies trying to answer this question. Some studies are looking at the many possible causes of SUDEP by following people living with epilepsy as well as reviewing the records of those who have died. Others are measuring what happens to your heart and lungs during a seizure. The MORTEMUS study is examining cases of SUDEP that have occurred in people with uncontrolled epilepsy being evaluated in epilepsy monitoring units. The North American SUDEP Registry is gathering case information and tissue samples from individuals who have died of SUDEP. In addition, researchers are looking at the role autopsies can and should play in SUDEP research. Plenty of time will be left at the end of the webinar to answer your questions.
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