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Dear Allison, Mary and the team that made Camp Courage possible; Thank you from the bottom of our hearts! It was an extraordinary experience for our daughter.... Camp Parent
Understanding SUDEP Research and the Role You Can Play - Webinar12/30/2013
The next Webinar scheduled by PAME - Partners Against Mortality in Epilepsy, will be on January 15, 2014.
During this webinar we will begin with a look at what research is telling us about the possible causes as well as future prevention methods and cures for SUDEP. Some of the questions that researchers are seeking to understand and answer include:• Does slowed brain function after a seizure play a role in SUDEP?
• Do seizures lead to irregular heart rhythms?
• What are some possible prevention approaches to SUDEP?
• Are there any lessons from SIDS research that can help us?
• What might be the role of electro-cerebral shutdown in SUDEP?
The second part of this webinar will explore how you or a loved one can help by joining a study. We will also discuss the support needs of research study participants and the resources available to them. The presenters will also briefly discuss the SUDEP registry and its role in SUDEP research. Plenty of time will be left for your questions at the end of the webinar.
For more information on how to register visit the PAME website
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