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Understanding SUDEP Research and the Role You Can Play - Webinar
12/30/2013

The next Webinar scheduled by PAME - Partners Against Mortality in Epilepsy, will be on January 15, 2014.

One of the three presenters is Dr. Lawrence Hirsch, Professor of Neurology;Chief, Division of Epilepsy and EEG;Co-Director, Yale Comprehensive Epilepsy Center Yale University.

Ending sudden unexplained death in epilepsy (SUDEP) is a shared responsibility. And you can help! Any successful effort will require doctors, people with epilepsy, nurses, researchers, coroners and those bereaved by the loss of someone to SUDEP to work together. It will require collaboration across many different organizations over many years.

During this webinar we will begin with a look at what research is telling us about the possible causes as well as future prevention methods and cures for SUDEP. Some of the questions that researchers are seeking to understand and answer include:

•      Does slowed brain function after a seizure play a role in SUDEP?
•      Do seizures lead to irregular heart rhythms?
•      What are some possible prevention approaches to SUDEP?
•      Are there any lessons from SIDS research that can help us?
•      What might be the role of electro-cerebral shutdown in SUDEP?

The second part of this webinar will explore how you or a loved one can help by joining a study. We will also discuss the support needs of research study participants and the resources available to them. The presenters will also briefly discuss the SUDEP registry and its role in SUDEP research. Plenty of time will be left for your questions at the end of the webinar.

For more information on how to register visit the PAME website


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