Lorelei "Leia" is almost 4 years old, and she lives with myoclonic epilepsy. She was born at 31 weeks and spent 9 weeks in the NICU. At 9 months old she experienced her first seizure, and it almost took her from our family. It was terrifying. During the week of her first birthday she was diagnosed with epilepsy. At one point she was having up to 50 seizures a day, but thank goodness we got a handle on it with a combination of medications. Epilepsy is a relentless monster.... even if your child's seizures are well controlled, you live in constant fear of the next breakthrough. Please walk with us or on your own virtually on our team, we would appreciate it so much! Let's fight this monster together!