Angelee is 7 years old. When she was born she had developmental issues. Everything was going well until she turned about 18 months old. She would bang her head on the wall, fall head first, scream, pass out for hours.
One night I heard Angelee choking in her room. I went to check and she was choking in her vomit. I tried to wake her up but she wasn’t responding. I picked her up took her to the bathroom to clean her up and change her clothes, but at that moment I realized Angelee's right side of her body was paralyzed. I called the ambulance and they confirmed that what she was having was a seizure.
Angelee was at Backus Hospital in Norwich, CT for hours and they could not stop her seizures. They tried a few medications but nothing worked, she was still having seizures but passed out. She was admitted into Connecticut Children’s Medical Center (CCMC) for further evaluation.
When the test results came back it showed Angelee had an sinus
infection that went up into her right side of her brain, this was causing her to have seizures. They decided they were going to keep her admitted until her seizures were controlled, and she was able to get movement back on her side that was paralyzed. They started her off on antibiotics for the sinus infection and a medication called Tegretol for the seizures. They thought that these seizures were only temporary and that as she got better they would go away. However, Angelee continued having seizures and at about 3 years old they finally diagnosed her with epilepsy. When she was about 4 years old the Tegretol just stopped working. The neurologist realized with that the Tegretol was working against her. Her neurologist, who she has now, quickly took her off of it and since then she’s been on and off many medications to help control her epilepsy.
We finally found a combination of meds that work for her and a neurologist from CCMC (Dr. Ascadi) that i truly appreciate. There are still certain situations that trigger her seizures for example if she has a headache, the summer time, a cold, lack of sleep, irritation, or overstimulated. So far what i have noticed now is her seizures have occurred more during the summer time.
I have to give thanks to the CCMC team and her neurologist Dr. Ascadi. Yes its been a rough 7 years, and I'm sure there will be days she won’t feel well, and might have a seizure.