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Thank you so much for attending my son's PPT meeting. I really believe you helped the team understand my son's epilepsy. Parent
Faces of Epilepsy
Angelee is 7 years old. When she was born she had developmental issues. Everything was going well until she turned about 18 months old. She would bang her head on the wall, fall head first, scream, pass out for hours.
One night I heard Angelee choking in her room. I went to check and she was choking in her vomit. I tried to wake her up but she wasn’t responding. I picked her up took her to the bathroom to clean her up and change her clothes, but at that moment I realized Angelee's right side of her body was paralyzed. I called the ambulance and they confirmed that what she was having was a seizure.
Angelee was at Backus Hospital in Norwich, CT for hours and they could not stop her seizures. They tried a few medications but nothing worked, she was still having seizures but passed out. She was admitted into Connecticut Children’s Medical Center (CCMC) for further evaluation.
When the test results came back it showed Angelee had an sinus
We finally found a combination of meds that work for her and a nuerologist from CCMC (Dr. Ascadi) that i truly appreciate. There are still certain situations that trigger her seizures for example if she has a headache, the summer time, a cold, lack of sleep, irritation, or overstimulated. So far what i have noticed now is her seizures have occurred more during the summer time.
I have to give thanks to the CCMC team and her neurologist Dr. Ascadi. Yes its been a rough 7 years, and I'm sure there will be days she won’t feel well, and might have a seizure.