Epilepsy Support Group Network - Connecticut

The Epilepsy Foundation of CT Support Group Network

Due to the COVID-19 pandemic, we have moved all our support groups to a virtual setting until further notice. This is done out of an abundance of caution to keep all of our clients, staff, volunteers, and the community safe during this difficult time. Stay tuned for updates on a potential return to in-person support group meetings.

Please contact monica@epilepsyct.com to register.

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Whether you are a person with Epilepsy or the parent or family member of a loved one with Epilepsy, there is a place for you at one of our support groups. Our groups offer a safe and supportive environment for individuals to share their stories, offer mutual support, and learn from other’s experiences.

To learn more about our groups click on the group that would most suit your needs. (Take note that we have groups for parents, teens, adults, and young adults.) We would love to know if you will be joining a group for the first time so that we can be sure to have someone available to greet you when you arrive!

For more information on these groups, call 860-346-1924 or email monica@epilepsyct.com.

Telephone Support Network

If you are unable to attend one of the support groups we have a few other options available for you to receive the support that you need.

This unique program links people with Epilepsy as well as parents and families together so they can gain support and knowledge, share their experiences, talk and listen, while furthering their understanding of epilepsy.

Participating in this program is easy...

Simply call our office at 860-346-1924 or email info@epilepsyct.com with your information and we will send you the contact information of someone in a similar situation as you.

Virtual Pre Teen / Teen Social Support Group

Nikki, CT Epilepsy Support Group

Date / Time:
1st Tuesday of every month
7:00pm - 8:00pm

This group is open to ages 12-17 with epilepsy. Parent or guardian written consent is required for a child to attend.

I'm Nikki. I was diagnosed with epilepsy at seven years old. I have been on countless medications, the Ketogenic Diet-twice, and had brain surgery in high school. As a kid, I had seizures; it was something that happened; I never thought of myself as really being different. I told people I “had seizures” rather than epilepsy because no one knew what epilepsy was. But I never let it stop me from doing anything. Today I have a Master’s in elementary education and work full time.

Ready to Join this Support Group? Click here »

Living Well With Epilepsy - Virtual Young Adult Support Group

Paige Marinelli, CT Epilepsy Support Group

Date / Time:
1st Tuesday of every month
7:00pm - 8:00pm

If you would like to join others in sharing experiences, gaining peer support and learning together about epilepsy and overcoming challenges to live well with epilepsy, join us! Group topics to be included: Goals and Aspirations, Healthy Relationships, Identity & Self-image, Depression & Anxiety, & Facing & Overcoming Challenges. This group was created specifically for those aged 18-30 with an Epilepsy diagnosis.

I am thrilled to be the Epilepsy Foundation group leader for young adults! I too am a young adult with epilepsy, and I am currently working towards my MSW so that I can further assist and empower those with epilepsy and individuals with disabilities. I am also a certified health coach as well as a high school soccer coach. My hope for this group is that together, we will create a welcoming, supportive community where every person feels comfortable to discuss their own challenges around epilepsy, build confidence, celebrate victories, and work towards their goals. As an individual experiencing some of the same challenges you are, you can be certain that I will be supportive, empathetic, and encouraging at every meeting. I truly look forward to supporting you all on your own unique journeys.

Ready to Join this Support Group? Click here »

Virtual Open Adult Support Groups

This group is open to people with epilepsy ages 18 and up, parents of a child with epilepsy, and caregivers of people with epilepsy.

Date / Time:
3rd Tuesday of every month (Co-facilitated by Chuck Pagano)
Both groups: 7:00pm - 8:00pm

Ready to Join this Support Group? Click here »