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Testimonials
Dear Allison, Mary and the team that made Camp Courage possible; Thank you from the bottom of our hearts! It was an extraordinary experience for our daughter.... Camp Parent



Epilepsy Resources:
Benefits

Benefits.gov
Benefits.gov (www.Benefits.gov) offers information on more than 1,000 Federal and state benefit programs. Simply complete the free and confidential questionnaire and our prescreening tool will generate a tailored list of programs just for you.


Connecticut JOBS FIRST-Temporary Assistance for Needy Families
Temporary Family Assistance is the name for the cash assistance program for basic and special needs which are paid to recipients of Jobs First.

Disability.gov
Disability.gov provides a number of ways to find information about Social Security disability benefits and other benefit programs for people with disabilities.


Social Security and Disability Resource Center (SSDRC)
Provides information on the federal government's two disability benefit programs - Title II SS disability benefits and Title 16 SSI disability benefits.

Social Security Disability Benefits

Supplemental Nutrition Assistance Program (Food Stamps)
SNAP provides low-income households with electronic benefits they can use like cash at most grocery stores. SNAP is the cornerstone of the Federal food assistance programs, and provides crucial support to needy households and to those making the transition from welfare to work.

Veterans-National Resource Directory
The National Resource Directory (NRD) provides access to services and resources at the national, state and local levels that support recovery, rehabilitation and community reintegration to wounded warriors, service members, veterans, and their families.


Education and Advocacy

Connecticut Parent Advocacy Center (CPAC)
The CT Parent Advocacy Center, Inc. (CPAC) is a statewide nonprofit organization that offers information and support to families of children with any disability or chronic illness, age birth through 26. The Center is committed to the idea that parents can be the most effective advocates for their children, given the confidence that knowledge and understanding of special education law and its procedures can bring.

Connecticut Special Education PTA (SEPTA) Council
Statewide organization whose primary mission is to facilitate the sharing of information among groups that support families of children with special needs, including both PTA and non-PTA organizations, and to communicate such information to families and teachers who would benefit from these services.

Epilepsy Classroom
We're Here to Help: Created for parents & teachers. Epilepsy Classroom is here to provide advice, insight, and tools that can help make handling epilepsy just another part of the school day.

Epilepsy Explained Just for Kids
Trusted answers from the Hospital for Sick Children.

Smart Kids with Learning Disabilities
A resource for parents of children with learning disabilites and ADHD.

Wrights Law
Wrights law is a website which provides case studies, information, and advocacy for special education.


Employment

Ability Beyond Disability
Since 1953, Ability Beyond Disability has been helping hundreds of individuals each year to find meaningful employment at major corporations, local businesses, retail stores, restaurants, child and health care programs and a number of rewarding opportunities in the community.


CareerOneStop
Find workforce services in your neighborhood or across the country

Connect-Ability Career Center
Connect-Ability works to remove barriers that make it hard for job seekers with disabilities to find and keep jobs. Our role is to offer information, tools and technical assistance to job seekers and employers rather than provide direct job placement services.

CT Bureau of Rehabilitation Services
The Bureau gives individuals with significant physcial and/or mental disabilities the tools, information and support they need to find a job.

Disability.gov

Epilepsy Foundation of America - Career Support Center
The Career Support Center is designed for people with epilepsy seeking employment or intent on keeping their current job. Whether you are currently employed, unemployed, underemployed or in search of a new job, the Career Support Center is here for you.

GettingHired.com
Careers & Community for talented people with disabilities. Search for thousands of Jobs nationwide.

Think Beyond the Label
An online jobs portal that connects job seekers with disabilities to employers, including those that are actively seeking to hire them.


En Espanol (Spanish)

Benefits.gov
Su acceso a los beneficios del Gobierno

Conozca las Preguntos "Know the Questions"
Health Talk for Spanish-Speakers from the Agency for Healthcare Research & Quality (AHRQ)

Healthfinder.gov
Vive Bien. Aprende Como.

La Epilepsia
En Espanol-Epilepsy Foundation of America

NeedyMeds
Encuentre ayuda con el costo de los medicamentos.


Epilepsy Information & Support

A Piece of the Puzzle
A social community dedicated to those with special needs and disabilities where you can have fun, meet others, chat, play games and read articles.

CDC - Centers for Disease control & prevention

Connecticut State Dept of Education's Annual Report - Physical Restraint
Connecticut State Dept. of Education's Annual Report on the Use of Physical Restraint and Seclusion in Connecticut is now available. Click here to view the report: http://1.usa.gov/16cFtJa. In 2011-12, Connecticut had 37, 063 incidents of seclusion and restraint. Connecticut allows restraint to be used in emergencies threatening physical danger and seclusion to be used in emergencies or as stated in a student's IEP. There were 13,755 emergency uses of restraint; 5,161 emergency uses of seclusion; and 18,147 uses of seclusion in non-emergencies where an IEP allowed it to be used for other reasons, such as behavior modification.

Emergency Preparedness Information
Information from READY.gov (Prepare. Plan. Stay Informed.)All individuals should take steps to prepare for all kinds of emergencies from fire and floods to potential terrorist attacks.

Epilepsy & the African American Community
About the Campaign:  This site was created to respond to the growing number of African Americans living with epilepsy. Know the difference is an outreach and education campaign to create dialogue in the African American community about the stigma and misconception surround epilepsy.
Epilepsy & the African American Community

Epilepsy Life Links
Epilepsy Life Links website.

Epilepsy.com Web site
A wealth of epilepsy information from a variety of sources available in different formats.

EpilepsyAdvocate.com
Epilepsy Advocates are a community of people and their families living with all types of epilepsy. Get to know the inspirational stories of Epilepsy Advocates, people like you who are finding ways to take control of their epilepsy and their potential. Come back often for more information, insight, and support. And be inspired today - hear the stories our Advocates are sharing.

No More Seizures
This site also provides basic information but also ties into our website to try to encourage viewers to seek information in greater depth.

Patients Like Me
An online Advocacy forum devoted to specific conditions including Epilepsy

WebEase
WebEase (Web Epilepsy, Awareness, Support and Education) is an interactive, on-line self-management program for people with epilepsy. The goal of WebEase is to support and foster the management of epilepsy by people with epilepsy. WebEase was developed by a team of Emory University researchers and physicians who treat patients with epilepsy.


Epilepsy Treatment & Research

CDC - Centers for Disease control & prevention
CDC conducts or supports research to strengthen the public health science base and to guide public health practice.

Connecticut Study of Epilepsy
Our study is devoted to the understanding of seizure outcomes as well as the social, educational, employment, and behavioral impact of childhood and adolescent-onset epilepsy on the individual as well as on the family.

CURE (Citizens united for Research in Epilepsy)
Citizens United for Research in Epilepsy is a nonprofit organization dedicated to finding a cure for epilepsy by raising funds for research and by increasing awareness of the prevalence and devastation of this disease.

faces - Finding A Cure For Epilepsy & Seizures
Website for Finding A Cure for Epilepsy and Seizures (faces). Faces supports epilepsy research, education and awareness, and community building events for all people with epilepsy.

National Institute of Neurological Disorders & Stroke


Healthcare & Medical

Connecticut Medical Home Initiative for Children & Youth with Special Health Care Needs (CYSHCN)
In a medical home, a pediatric health care provider works in partnership with children and youth and their families to assure that all the medical and non-medical needs of the children and youth are met.

Connecticut Pre-Existing Condition Insurance Plan
On-line consumer information about the Connecticut Pre-Existing Condition Insurance Plan. You’ll learn the basics of this new health coverage option, and how to take the first step of applying.

Healthcare Liaison (HCL)
Healthcare Liaison offers assistance with healthcare:
•Emergencies: Guiding you and your family through a crisis.
•Planning: Arranging for care during and after a hospital stay.
•Advocacy: Helping you understand and receive the care you need.
•Resources: Locating community resources for your healthcare needs.
•Long-term Planning: Addressing plans for care in the future for you and your family.

HealthCare.gov
You can learn more about the Affordable Health Care Act here and the Health Insurance Marketplace that will launch October 1st, 2013.
HealthCare.gov

Healthfinder.gov
Live Well. Learn How.

Patient Advocate
Provides effective medication and arbitration services to patients to remove obstacles to healthcare.


Helmets/Headgear

Danmar Products
Custom head protection includes hard and foam shell helmets

Guardian Helmets
At Guardian Helmets, we are committed to innovation, design and development of products that reduce the risk of traumatic brain injury for people who live with seizures. Our helmets are made of the highest quality EVA foam rubber for durable protection and are light weight, breathable and washable for a clean, comfortable fit. You can save $5 off your purchase and a $5 donation will be made to EFCT when you use coupon code EFCN at checkout.

Kid Safety Hats, LLC
Protective safety hats for children from 7 months until just over 2 years.

Plum Enterprises


Higher Education Scholarships and Aid

Benefits.gov Grants/Scholarships/Fellowships

College Scholarships.org
College Scholarships, Grants, Student Loans, & Financial Aid Blog

Epilepsy Foundation National Site

Epilepsy Life Links
College scholarships for high school graduates and adults returning to college, university, trade school or other institutions of higher learning

FACES College Scholarship Program
FACES (Finding a Cure for Epilepsy and Seizures)will provide financial support for the education of incoming college freshmen affected by epilepsy. We are seeking to recognize the personal accomplishments of those living with epilepsy at the start of their college journey. Awarded scholarship amounts will vary depending on the applicant’s financial need. Awards are to be used at a United States based institution for higher education.

Help for College Students with Disabilites

Patient Advocate Foundation-Scholarships

The Aaron Gregory Riley Scholarship
Must be admitted to or currently a full-time Ohio Wesleyan University student, male or female, who maintains at least a 3.0 cummulative grade point average from high school or college, and identifies as living with epilepsy.

UCB Family Epilepsy Scholarship Program


Legal Aid

Epilepsy Foundation of America Legal Defense Fund
Their mission is to end epilepsy-related discrimination and injustice through education and increased access to legal services for individuals with epilepsy -- through a system of managed referrals and legal support to a nationwide network of attorneys committed to this cause.

Statewide Legal Services of Connecticut, Inc.
Statewide Legal Services is a telephone hotline helping callers with legal problems in Connecticut. We talk to callers about many different non-criminal legal problems. Some of the problems we can talk to you about include family, employment, public benefits, housing and consumer problems like bankruptcy. There is no charge for our services, but we can only help people with very low income.



Mental Health

Mental Health.gov
This website provides information about the signs of mental illness, how individuals can seek help, and how communities can host conversations about mental health.


Other Assistance

A. J. Pappanikou Center for Developmental Disabilities
The A. J. Pappanikou Center for Developmental Disabilities (center) is a disability research and training program located on the campus of the University of CT Health Center in Farmington, CT.

Citizens Energy/Home
Citizen's Energy Corporation exists to help make life's basic needs more accessible and affordable.

Housing-Disability.gov

Portlight Strategies, Inc.
Portlight Strategies meets the specific needs of underserved, unserved and forgotten people. A website full of information for disabled people on what to do if you need to evacuate, find shelter, and prepare for storms and disasters.

The Kennedy Center
A not-for-profit rehabilitation agency supporting children and adults with disabilities.


Parents

Connecticut Family Support Network
A resource for Families Raising Children with Disabilities

CT Lifespan Respite Coalition
Working to establish quality, coordinated respite services in Connecticut

Epilepsy & my Child
An informative website provided by the Epilepsy Foundation. Whether your child was just diagnosed, or you have specific concerns about medication, getting support at school, or another issue, the goal is to provide the information you need.

Exceptional Parent
The trusted resource for the Special Needs Community...Across the Lifespan

Hopeful Parents Network
A Grassroots Support for Parents of kids with special needs

Joey's Song CD-Songs for Kids
The Joseph Gomoll Foundation was setup to raise money in support of the Epilepsy Foundation. Our goal is to raise money that can be used for research, treatment and support of those affected by this terrible disease.
Because music was the centerpiece of Joey’s world, there is no better way for us to raise money in his name than through music. The Foundation is releasing a series of CDs called “Joey’s Song”. The CDs feature rare and unreleased songs by major recording acts from around the world. In addition, Joey’s Song for Kids features children’s music, most recorded specifically for Joey’s Song.


National Information Center for Children and Youth with Disabilities (NICHCY)
NICHCY provides information on disabilities and disability-related issues for families, educators and other professionals; focuses specifically on children and youth up to age 22.

Pacer Center
PACER Center was created by parents of children and youth with disabilities to help other parents and families facing similar challenges. The Center provides assistance to individual families, workshops, and materials for parents and professionals.

PATH-Parents Available to Help, Inc.
Parent Support for children with special needs in Connecticut-A family support & resource network

Sibling Support
The Sibling Support Project is a national effort dedicated to the life-long concerns of brothers and sisters of people who have special health, developmental, or mental health concerns.


Prescription Assistance Programs



Access2Wellness
Access2wellness is designed to help people to have better access to the prescription medication(s) they need.

Caring Voice Coalition
Provides financial assistance for prescription coverage, prescription co-payment assistance and/or Medicare prescription co-payment assistance for medical conditions covered by the program.

Connecticut Partnership for Prescription Assistance
Need help with your medication supply? Visit this website or call 1-888-4PPA-NOW (1-888-477-2669) to find out what prescription assistance programs you qualify for.

GSKforYou.com
GlaxoSmithKline (GSK) believes people who don't have prescription drug coverage should be able to get the medication they need.  If you don't have prescription drug coverage, there are ways to save on your prescription medicines.

Needy Meds
Needymeds is a 501(c)(3) non-profit information resource devoted to helping people in need find assistance programs to help them afford their medications and cost related to health care.

Patient Assistance Programs

RX Hope
RxHope is exactly what its name implies...a helping hand to people in need in obtaining critical medications that they would normally have trouble affording. We act as your advocate in making the patient assistance program journey easier and faster by supplying vital information and help.

Together Rx Access Card
At least 50 third-party organizations, including the Epilepsy Foundation, have voiced their support of the recently implemented Together Rx Access™ Card program, which promises to provide approximately 36 million uninsured Americans under age 65 with significant discounts on a wide array of brand-name and generic prescription products.

Xubex Pharmaceutical Patient Assistance Program
The leading provider of quality pharmaceutical services. Their innovative program provides pharmaceutical services to qualified individuals for as low as $20 for a 3 months supply of medication.


Professionals

Connecticut Children's Medical Center
Website for the neurology department at CCMC, including EEG testing and the Ketogenic Diet.

Hartford Hospital Comprehensive Epilepsy Center

Northeast Regional Epilepsy Group
This group offers a broad range of clinical and diagnostic services necessary to provide comprehensive care for each and every patient with epilepsy.

NYU Comprehensive Epilepsy Center
Includes information about the NYU Comprehensive Epilepsy Center, the largest epilepsy center in the United States.

Yale New Haven Hospital - Pediatrics
Includes information about the Yale New Haven Pediatric Neurology Department

Yale New Haven Hospital - Adult
Includes information about the Yale New Haven Neurology Department


Seizure Response Dogs

Canine Assistants

Canine Partners for Life

Delta Society-National Service Dog Center

Little Angels Service Dog Training

Paws with a Cause
*The Epilepsy Foundation does not recommend or endorse any of these providers and urges consumers to perform their own research on this topic.


SUDEP (Sudden Unexpected Death in Epilepsy)

CDC - Centers for Disease control & prevention

Danny Did Foundation
Learn more about this family's mission to prevent deaths caused by seizures

Epilepsy Foundation of America-SUDEP

PAME (Partners against Mortality in Epilepsy)

SUDEP Action
SUDEP Action (formerly Epilepsy Bereaved)is committed to preventing Sudden Unexpected Death in Epilepsy and other epilepsy deaths through research, awareness and influencing change.

SUDEP Aware
A not-for-profit organization dedicated to raising awareness and understanding of Sudden Unexpected Death in Epilepsy (SUDEP), with the ultimate goal of finding its cause(s) and prevention.

SUDEP Institute
The SUDEP Institute is a project led by the Epilepsy Foundation in collaboration with CURE, SUDEP Aware, Danny Did Foundation, AES and other leading epilepsy organizations and experts. Our mission is to prevent Sudden Unexpected Death in Epilepsy (SUDEP) and support people confronting SUDEP.


Technology and Devices

American Medical ID
Personalized Medical ID Jewelry

Epilepsy Foundation of America Store

MedicAlert Foundation
Med alert bracelets and necklaces. 24 hour response center which can provide information to emergency personnel and family

Medication Reminder
Reminders and alerts to notify an individual of when to take their medication.

Safety Place Mat
Place mat specifically designed to protect individuals from head, face and upper body injuries while sitting at tables and desks.

SeizureTracker
The sole purpose of SeizureTracker.com is to help people living with epilepsy. This site allows a user to log seizures and medications and create reports with graphical representations that can be emailed directly to doctors.

Sleep-Safe Pillow
This pillow was created by a father of a son with epilepsy. It was developed in an effort to prevent suffocation during nighttime seizures.

SmartWatch
The SmartWatch works in conjunction with the user's Android smart phone: When the SmartWatch detects movement outside a normal spectrum (a possible seizure), it signals the smartphone which then sends an alert to the caregiver or family member within seconds.



Transition


Transportation and Travel

Access Travel Center
A resource of valuable travel and health information for people with special needs.

Connecti-Ability Transportation
Reliable transportation is important for everyone who needs to get to a job. Some people may wish to own and maintain their own vehicle. Others may choose to hire a reliable driver. If these options are too costly, many people use public transportation with great success. There are many ways you can get to your job. Just take a look at the options to find the one that works for you.

CT Rides
CT Rides is a good resource for transit information. They are especially helpful in getting information to get around the state. They have a toll free number -- 1-877- 287- 4337.

ECTC
ECTC has information on travel options in Eastern CT. They have a "Getting Around Eastern Connecticut" guide posted on their website.

J. Kiffin Penry Patient Travel Assistance Fund
The J. Kiffin Penry Patient Travel Assistance Fund is a reimbursement fund that is available to individuals who must travel more than 50 miles from their home for treatment for their epilepsy/seizure disorder.

Mobility Management Website for Southwest CT
The Mobility Management website for Southwestern Connecticut.




For more information about Epilepsy please visit the Epilepsy Foundation at www.epilepsyfoundation.org.


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