Discrimination

Americans with Disabilities Act Coalition of Connecticut (ADACC)
Your CT Affiliate for all things ADA.

Commission on Human Rights & Opportinities (CHRO)


The mission of the Connecticut Commission on Human Rights and Opportunities is to eliminate discrimination through civil and human rights law enforcement and to establish equal opportunity and justice for all persons within the state through advocacy and education.


Epilepsy Foundation of America Legal Defense Fund
Their mission is to end epilepsy-related discrimination and injustice through education and increased access to legal services for individuals with epilepsy -- through a system of managed referrals and legal support to a nationwide network of attorneys committed to this cause.

Statewide Legal Services of Connecticut, Inc.
Statewide Legal Services is a telephone hotline helping callers with legal problems in Connecticut. We talk to callers about many different non-criminal legal problems. Some of the problems we can talk to you about include family, employment, public benefits, housing and consumer problems like bankruptcy.

U.S. Department of Justice - Civil Rights Division
General ADA information and sources as well as specific employment related publications and information.


Employment

Ability Beyond Disability
Since 1953, Ability Beyond Disability has been helping hundreds of individuals each year to find meaningful employment at major corporations, local businesses, retail stores, restaurants, child and health care programs and a number of rewarding opportunities in the community.


CareerOneStop
Find workforce services in your neighborhood or across the country

Job Accommodation Network (JAN)
Great resource for helping to research and discover reasonable accommodations that can be made. Searchable by job type or by disability. Also, gateway to other resources about employment and disability.

Questions & Answers about Epilepsy in the Workplace and the Americans with Disabilities Act (ADA)


Epilepsy Treatment & Research

CDC - Centers for Disease control & prevention
CDC conducts or supports research to strengthen the public health science base and to guide public health practice.

Clinical Trials.gov
ClinicalTrials.gov is a database of privately and publicly funded clinical studies conducted around the world.

CURE (Citizens united for Research in Epilepsy)
Citizens United for Research in Epilepsy is a nonprofit organization dedicated to finding a hublot replica cure for epilepsy by raising funds for research and by increasing awareness of the prevalence and devastation of this disease.

faces - Finding A Cure For Epilepsy & Seizures
Website for Finding A Cure for Epilepsy and Seizures (faces). Faces supports epilepsy research, education and awareness, and community building events for all people with epilepsy.

National Institute of Neurological Disorders & Stroke


Parents

Connecticut Family Support Network
A resource for Families Raising Children with Disabilities

Connecticut Parent Advocacy Center (CPAC)
The CT Parent Advocacy Center, Inc. (CPAC) is a statewide nonprofit organization that offers information and support to families of children with any disability or chronic illness, age birth through 26. The Center is committed to the idea that parents can be the most effective advocates for their children, given the confidence that knowledge and understanding of special education law and its procedures can bring.

Connecticut Special Education PTA (SEPTA) Council
Statewide organization whose primary mission is to facilitate the sharing of information among groups that support families of children with special needs, including both PTA and non-PTA organizations, and to communicate such information to families and teachers who would benefit from these services.

PATH-Parents Available to Help, Inc.
Parent Support for children with special needs in Connecticut-A family support & resource network

Wrights Law
Wrights law is a website which provides case studies, information, and advocacy for special education.


Prescription Assistance

Good RX
Type in your prescription name and print out coupons to use in place of insurance. The cost may be cheaper!

Josh Provides
To improve the quality of life for those living with epilepsy or other seizure disorders. Financial assistance is available for prescriptions and beyond.

Medicine Assistance Tool

myNEURELIS Assistance Program
myNEURELIS offers insurance coverage check, access to nurse educators, co-pay card savings, and a prescription assistance program for people that are taking Valtoco (diazepam nasal spray). You can enroll in the myNeurelis program to access all of these benefits.

National Organization for Rare Disorders
Since 1987, NORD has provided assistance programs to help patients obtain life-saving or life-sustaining medication they could not otherwise afford. These programs provide medication, financial assistance with insurance premiums and co-pays, diagnostic testing assistance, and travel assistance for clinical trials or consultation with disease specialists.

Needy Meds
Needymeds is a 501(c)(3) non-profit information resource devoted to helping people in need find assistance programs to help them afford their medications and cost related to health care.

Recordati Rare Disease Patient Support

RX Hope
RxHope is exactly what its name implies...a helping hand to people in need in obtaining critical medications that they would normally have trouble affording. We act as your advocate in making the patient assistance program journey easier and faster by supplying vital information and help.

The Assistance Fund
The Assistance Fund is an independent charitable patient assistance foundation that helps patients and families facing high medical out-of-pocket costs by providing financial assistance for their copayments, coinsurance, deductibles, and other health-related expenses.

Together Rx Access Card
At least 50 third-party organizations, including the Epilepsy Foundation, have voiced their support of the recently implemented Together Rx Access™ Card program, which promises to provide approximately 36 million uninsured Americans under age 65 with significant discounts on a wide array of brand-name and generic prescription products.


Safety

American Medical ID
Personalized Medical ID Jewelry

Danmar Products
Custom head protection includes hard and foam shell helmets

Embrace Watch
Detects possible convulsive seizures and instantly alerts caregivers, whether they're sleeping next door or are living miles away.

Glaciertek
Hot weather can be difficult for children to cope with -- especially if they have a pre-existing condition or live in an unforgiving climate. Keeping them cool can be a challenge. Glacier Tek makes a cooling vest that

Guardian Helmets

Heat Relief Depot
Cooling, Warming and Safety Products

Opti-Cool Headgear
Protective safety hats for children from 7 months until just over 2 years.

Plum Enterprises

SAMI: The Sleep Activity Monitor
SAMi is a sleep activity monitor for caregivers and individuals who need to watch for abnormal movements at night. During sleep, audio-video information from a remote infrared video camera is sent to an app running on an iOS device such as an iPhone or iPod Touch. The SAMi app records and analyzes the video for unusual activity. When an unusual event is detected, an alarm is sounded, followed by live sound and video from the SAMi network camera. A parent/caregiver can then take any necessary action. Read about SAMi at www.samialert.com

SeizureTracker
The sole purpose of SeizureTracker.com is to help people living with epilepsy. This site allows a user to log seizures and medications and create reports with graphical representations that can be emailed directly to doctors.

Sleep-Safe Pillow
This pillow was created by a father of a son with epilepsy. It was developed in an effort to prevent suffocation during nighttime seizures.

Somnilight Light Therapy
Glasses to help with photo sensitivity.


Seizure Response Dogs

4 Paws for Ability

Canine Assistants

Canine Partners for Life

Canines 4 Hope

Delta Society-National Service Dog Center

Little Angels Service Dog Training

Stonehill Kennel
Stonehill Kennel is a full service ALL BREED Professional Dog Training facility offering expert obedience and behavioral modification services for family companion dogs and their owners.
*They have experience training seizure response dogs.

The Exceptional Pet
Offers private behavioral consultations and training for pet dogs and Service Dogs throughout Northern Fairfield County as well as group obedience classes for puppies, beginners and more advanced students.


SUDEP (Sudden Unexpected Death in Epilepsy)

CDC - Centers for Disease control & prevention

Danny Did Foundation
Learn more about this family's mission to prevent deaths caused by seizures

Online Bereavement Support Group
This closed online community is a great resource for bereaved families to connect with and support one another.

SUDEP Action
SUDEP Action (formerly Epilepsy Bereaved)is committed to preventing Sudden Unexpected Death in Epilepsy and other epilepsy deaths through research, awareness and influencing change.

SUDEP Institute
The SUDEP Institute is a project led by the Epilepsy Foundation in collaboration with CURE, SUDEP Aware, Danny Did Foundation, AES and other leading epilepsy organizations and experts. Our mission is to prevent Sudden Unexpected Death in Epilepsy (SUDEP) and support people confronting SUDEP.


Transportation and Travel

Connecticut ADA Paratransit Resource Center
If you have a disability that prevents you from using the public transit bus service in CT you may be eligible for ADA Paratransit service. Click here for a printable or online application. Let us know if we can assist you with this process.

CT Rides
CT Rides is a good resource for information about your local bus system. Just click on the area closest to where you live. They have a toll free number -- 1-877- 287- 4337.

ECTC
ECTC has information on travel options in Eastern CT including a subsidized transportation voucher program. They have a "Getting Around Eastern Connecticut" guide posted on their website.

Freedon Ride Voucher Program
Freedom Ride is a prepaid reduced fare voucher program, which offers a 50% discount from the normal taxicab rate, with a minimum purchase of $25 initially. It is available to ADA eligible passengers who need transportation beyond the traditional ADA paratransit service area and hours or for same-day service. Click here for towns that are covered in CT.

J. Kiffin Penry Patient Travel Assistance Fund
The J. Kiffin Penry Patient Travel Assistance Fund is a reimbursement fund that is available to individuals who must travel more than 50 miles from their home for treatment for their epilepsy/seizure disorder.

Non Emergency Medical Transportation (NEMT)
Non-Emergency Medical Transportation (NEMT) is a limited transportation benefit that is provided to eligible Medicaid members in Connecticut who have no other way of getting to their medical, behavioral health or dental appointments.

Share the Fare
The Share the Fare program is for Stamford residents over the age of 62 and for disabled individuals. Share the Fare offers improved travel opportunities through a subsidized taxi program. Voucher holders book their taxi rides directly with the local taxi companies, and pay for them with Share the Fare vouchers.

The Kennedy Center
The Kennedy Center Mobility Services Department provides a variety of services and programs designed to allow people with disabilities of all ages and senior citizens to access public transportation safely and independently. If you need more personalized help for your transportation needs this may be a good place for you.




For more information about Epilepsy please visit the Epilepsy Foundation at www.epilepsyfoundation.org.

© 2020 Epilepsy Foundation Connecticut