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Thank you so much for the information you sent. My family feels much more educated about epilepsy. Ryan

Sharon's Ride.Run.Walk for Epilepsy
Sharon's Ride Run Walk for Epilepsy in ConnecticutPlease make a donation to support the Epilepsy Foundation of Connecticut so they can continue to provide education, recreation, support, informaiton and advocacy to the more than 60,000 people in Connecticut living with epilepsy. Thank You!

Please mail check/cash donations to:

Epilepsy Foundation of Connecticut
386 Main Street
Middletown, CT 06457-3360

Or use the form below to make any type of donation.

Max: The Amazing Race
Each family’s struggle with epilepsy is different. Epilepsy does not discriminate, and it doesn’t tell you ahead of time how and when it’s going to strike. The great thing about the Epilepsy Foundation of CT is that it is there for every family affected by epilepsy. From the very beginning, the Foundation offers support, provides information and resources, teaches faculty at schools, and visits hospitals and doctor’s offices. Had we known about the Foundation, particularly the Parent Support Group it runs, when Max was born our early journey would have been much different. We would have been able to connect with other families going through what we were to know what we were feeling was normal, was ok. We could have connected with families further along in their journeys or adults with epilepsy living fulfilling lives which would have provided us with the hope and positive outlook that we so desperately needed at the time. Our families could have received support to know more about Max’s emergency medication, what a seizure looked like and just how to help us go through what we were going through. Generally speaking, we wouldn’t have felt so isolated. Now through the Foundation, that Parent Group and our work with The Purple Pumpkin Project, we’ve connected with multiple families, two of whom have babies dealing with the very same life-altering diagnosis that Max had and we are able to pay it forward. We are able to show them who Max has become, even though we were told he may never thrive. We’re able to tell them that he’s in first grade at a regular public school, and can read. We can tell them that yes, he receives hours of Speech Therapy, but at least he can talk and loves to sing (Katy Perry is his absolute favorite). He receives hours of Occupational Therapy, but he can write his name. He gets to take two gym classes (every six year old boy’s dream!); the first so he can practice the skills, and the second so he can demonstrate them with the rest of his class. We can let them know he’s recognized on his soccer team and in his summer camp for his beaming smile and his new blue glasses. We can show them that while the doctors are presenting you with unknowns and tests and grave outlooks that their child can still accomplish anything. While we’ve been lucky to not struggle with seizures for the last two years (knock on wood, please, everyone, knock on wood), there have been other battles we’ve been fighting. The support of the Foundation has been instrumental in helping us connect with other families to get advice and recommendations. Please consider making a donation to our team, Max: The Amazing Race to help other families gain access to the wealth of resources the Epilepsy Foundation of CT has to offer.

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