On July 15, 2015 our little Matthew was born into the world. Unfortunately, life was not simple for him from the start.
He started having seizures within his first few hours of life. We quickly realized his seizures were difficult to control and decided to transfer him to Boston Children's for the best possible care.
After two months of hospital stays, Matty's seizures were finally under control and we had a diagnosis; KCNQ2 Epileptic Encephalopathy. KCNQ2 is a rare genetic disorder, that causes seizures early on in life as well as developmental delays and disabilities. As his parents, we were heartbroken by the diagnosis but relieved to know the cause.
Today, Matty is almost two years old with a bubbly and smiley personality. Matty is still struggling developmentally with eating, fine and gross motor skills, and is also experiencing Infantile Spasms.
Even though there is a long road ahead and not everyday is easy, we can always rely on Matty's contagious smile and adorable laugh to help us through difficult days.
Please help support us and Matthew by walking with us and donating to raise awareness for families affected by epilepsy.
|Donated to||Donor Name||Donation Notes||Amount|
|Team||Shelley Smith||Let me know about this event next year. I'd love to participate.||$25.00|
|Team||Gene Willis||Love to you guys. Matty has such wonderful and strong parents! March on!||$25.00|
|Team||Jennifer and Frank Niwinski||Undisclosed|
|Team||Jeffrey M Falk||$25.00|
|Team||Monty & Jude Helms||💜||$100.00|
|Team||ABC Marketing||Thank you for sponsoring us||$75.00|
|Team||Cheshire Fitness Zone||$75.00|
|Team||Lake Family||Many Blessings ❤️️||$20.00|
|Team||Magical Massage by Catherine||Thank you for sponsoring us and supporting Matthew. Matty loves his Nana||$110.00|
|Team||Ray & Mike's Deli||Thank you for sponsoring us and supporting Matthew||$75.00|
|Team||Michael & Nicole||$150.00|
|Team||Jessica Novy||Love you Matty! You have amazing parents. Wish I could physically be there for the event. Lots of love, Jess||$45.00|
|Team||Melissa McMinn||Love you Matty! Love, Auntie Mel||Undisclosed|
|Team||Aunt Christine & Uncle Kevin||We love you Matty||$75.00|
|Team||Mema & Grampie||We love you Matty||$100.00|
|Team||Lisa Brank||We love you Matthew!!!!||$100.00|
|Team||Laura Sokalski||We love you Matty! You have awesome parents! -Sabrina, Olivia, Laura, and Matt Sokalski||$50.00|
|McMinn, Michael||Amy BuzzellI||Wish I was there to walk for Matty. <3||$30.00|
|McMinn, Michael||Lou Werner and Amy Pond||Love you guys!||$50.00|
|McMinn, Michael||Michael McMinn||Cake pop fundraiser funds 💜||$116.00|
|Name||Walk, Run, or Ride||Donations Received|
|Carlo, Bridget (5)||Walk||$0.00|
|DeCapua , Katelin (3)||Walk||$0.00|
|Keeney, Anna (4)||Run||$0.00|
|McMinn, Michael (2)||Walk||$0.00|
|Ruocco, Melissa (2)||Walk||$0.00|
|Warner , Jessica||Walk||$0.00|