Our sweet Noelle Annette is now 2.5 years old & we are so excited to walk in her honor again!
Noelle has her first seizure around 5-6 months of age & was initially diagnosed with West Syndrome. A year later, her form of epilepsy progressed & now carries a diagnosis Lennox Gastaut Syndrome, a rare & debilitating form of epilepsy that requires 24/7 care. Despite suffering from daily seizures & significant developmental delays, Noelle manages to put a smile on the face of everyone she meets. Noelle loves music, going to school & feeling the breeze when she is outdoors. She brings out joy & love in all, teaching everyone what it means to live each day to the fullest. We are so grateful for the outpouring of support from our friends & family over the last few years.
We would love for you to join our team & walk with us, honoring Noelle, on May 17th at The Cove in Stamford.
Please consider donating to the Walk to End Epilepsy of CT on behalf of Noelle. Proceeds will go toward programs t& research hat Noelle & others will greatly benefit from.